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Spotlight PA Examines 1 Million Medical Marijuana Certifications


 

 

by Ed Mahon, Spotlight PA

 

Spotlight PA is an independent, nonpartisan newsroom powered by The Philadelphia Inquirer in partnership with PennLive/The Patriot-News, TribLIVE/Pittsburgh Tribune-Review, and WITF Public Media. Sign up for our free newsletters.

For Spotlight PA’s latest investigation into Pennsylvania’s medical marijuana program, we analyzed more than 1 million records of anonymized patient certifications — data the newsroom obtained after a 15-month legal battle with the state Department of Health.

These certifications allow hundreds of thousands of patients to legally use cannabis in the state. Our analysis offers the first comprehensive look at how the decision to add anxiety disorders as a qualifying condition transformed Pennsylvania’s program, and, in the eyes of some, made it possible for basically anyone to get a medical marijuana card.

Here’s what you need to know about our reporting.

 

Why did Spotlight PA obtain this data?

This story began nearly 20 months ago, in June 2021, when Spotlight PA reached out to the Pennsylvania Department of Health with a question: How often did medical marijuana patients qualify for the program because they had opioid use disorder?

At the time, Spotlight PA was reporting on the overdose death of a Bucks County man who was wrongfully denied addiction treatment funding because of his medical marijuana card.

The department initially refused to provide details about certifications for opioid use disorder, writing that it “cannot share specifics regarding patient use.”

Spotlight PA challenged that response using the state’s public records, or Right-to-Know, law. The department had released similar information before, and the newsroom had not asked for details identifying patients. When the department again denied our request, we appealed to the state’s Office of Open Records, which ruled in favor of Spotlight PA.

The Department of Health continued to push back, taking Spotlight PA to Commonwealth Court seeking to prevent the information’s release. That legal fight could have cost Spotlight PA thousands of dollars, but Paula Knudsen Burke, an attorney with the Reporters Committee for Freedom of the Press, represented the newsroom at no cost. Last August, Commonwealth Court ordered the department to release the data.

Anxiety disorders
231,759
Severe chronic or intractable pain
161,501
Post-traumatic stress disorder
40,346
Neuropathies
15,560
Cancer, including remission therapy
14,289
Opioid use disorder
13,181
Inflammatory bowel disease
5,761
Epilepsy
3,602
Multiple sclerosis
3,350
Damage to the nervous tissue of the central nervous system (brain-spinal cord)
3,265
Crohn’s disease
2,893
Glaucoma
2,325
Autism
1,859
Positive status for HIV or AIDS
1,777
Neurodegenerative diseases
1,127
Dyskinetic and spastic movement disorders
1,061
Parkinson’s disease
1,001
Intractable seizures
870
Tourette syndrome
526
Terminal illness
230
Sickle cell anemia
164
Amyotrophic lateral sclerosis
88
Huntington’s disease
51

 

 

 

 

 

What did the Department of Health release?

The department provided Spotlight PA with anonymized data on each certification created by a doctor over a six-year period. These records included the creation date, the certification’s status, the patient’s ZIP code, and the patient’s qualifying conditions.

At one point, the health department sent revised information for one year, saying the original data inadvertently included duplicates. The department provided updated data for that year, and a spokesperson told Spotlight PA that the agency had reviewed the other data and “found no issues.”

In total, the health department spreadsheets provided details on more than 1.13 million certifications created from November 2017 through August 2022.

Anxiety disorders
151,415
Severe chronic or intractable pain
92,404
Post-traumatic Stress Disorder
12,250
Cancer, including remission therapy
7,711
Opioid use disorder
5,368
Neuropathies
3,081
Multiple sclerosis
2,174
Inflammatory bowel disease
1,810
Epilepsy
1,575
Crohn’s disease
1,545
Glaucoma
992
Autism
971
Positive status for HIV or AIDS
913
Parkinson’s disease
608
Damage to the nervous tissue of the central nervous system (brain-spinal cord)
446
Intractable seizures
297
Dyskinetic and spastic movement disorders
289
Tourette syndrome
208
Neurodegenerative diseases
193
Sickle cell anemia
98
Amyotrophic lateral sclerosis
56
Terminal illness
51
Huntington’s disease
34

 

 

 

 

 

Did Spotlight PA exclude any certifications?

We excluded about 31,000 of the 1.13 million certifications — or 2.8% — from our analysis.

The health department placed certifications in one of nine status categories. Our analysis looked at two of those: active and expired. We excluded the other seven categories, such as ones that were created in error, never used, or canceled at the request of the practitioner. Those seven statuses accounted for a small percentage of the total certifications.

We also excluded three additional certifications that did not have any qualifying condition listed, and 408 certifications that were created before 2021 and still labeled as active in the records the state provided. The maximum time period for a certification is 12 months.

Why did Spotlight PA focus its reporting on anxiety disorders?

Our analysis found that anxiety disorders have become the dominant qualifying condition in recent years. In fact, anxiety disorders were a factor in more than 231,000 certifications created in 2021 — or 60% of the total for that year.

To better understand the significance of these data, we compiled our findings and discussed them with more than 20 medical professionals, patients, and others. They represented a range of backgrounds and offered nuanced views on anxiety as a qualifying condition.

How did other conditions compare?

Severe chronic pain ranked second — doctors listed it as a qualifying condition on more than 161,000 certifications — or 42% percent — created in 2021, the most recent year with complete data.

Pennsylvania has 23 approved qualifying conditions, and the data showed the others were used significantly less often.

Opioid use disorder, the condition that sparked our original data request, appeared as a qualifying condition on more than 13,000 certifications created in 2021. And for more than 5,000 certifications that year, opioid use disorder was the sole qualifying condition, meaning that was the only reason a person was eligible to use medical marijuana.

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Have others urged the Department of Health to release more data?

Yes, and for a variety of reasons.

“The Department of Health and the medical marijuana office do not do a good job of sharing program information with the public, with elected officials, or with permit holders,” said Meredith Buettner, executive director of the Pennsylvania Cannabis Coalition, an industry trade group.

Buettner thanked Spotlight PA “for fighting this fight” to get data out of the department.

The Pennsylvania Psychiatric Society, which has objected to anxiety disorders and opioid use disorder as qualifying conditions, also wants the department to collect and publicly release more data about the program.

“This data is of great interest to us,” Marina Goldman, a psychiatrist speaking on behalf of the group, said after reviewing Spotlight PA’s findings.

“I think there’s a great deal of overlap between what we’re asking to see and the data that you are starting to obtain.”

WHILE YOU’RE HERE… If you learned something from this story, pay it forward and become a member of Spotlight PA so someone else can in the future at spotlightpa.org/donate. Spotlight PA is funded by foundations and readers like you who are committed to accountability journalism that gets results.


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